Alpha-1 Reading Room

• Considering Alpha-1 Testing
• Newly Diagnosed with Alpha-1
• Living With Alpha-1

Welcome to the Alpha-1 Reading Room.

The Alpha-1 Reading Room is designed to help you find answers to important questions about alpha₁- antitrypsin (AAT) deficiency*.

*Also known as Alpha-1, AAT Deficiency, AATD, A₁-PI deficiency, alpha-1 proteinase deficiency, A1AD, or hereditary or genetic emphysema.

Learning about Alpha-1 is a first step. You can find out more about the condition and its symptoms, when testing is recommended for family members, what kinds of tests might be done to make a diagnosis, therapy options, and the genetics of Alpha-1.

Staying healthy is important for everyone, but it is especially important for Alphas. In the Reading Room, you will also find tips for protecting lungs and maintaining overall health.

Draw inspiration from Real People − Real Stories as you read about the experiences of Alphas successfully handling the challenges of living with AAT deficiency.

Since individuals with AAT deficiency are at risk for developing emphysema, we have also included information to help you better understand the relationship between emphysema and Alpha-1. You'll also find a primer on the respiratory system, with definitions and illustrations to help with some of complex information Alphas need to know.